My name is Ana and I am 34 years old. Four years ago I had my first child delivered by C-Section. I never thought that my health would take a radical turn from an “overlooked” cesarean risk.
During my cesarean section, I was implanted with endometrium tissue (uterus lining) in my abdominal rectus muscle. I spent the next three years in extreme pain. I was seen by OBGYNs and general physicians for my lump and symptoms in over 30 visits, only to be undiagnosed or misdiagnosed over those three years. I kept telling the doctors to check my lump, but the doctors kept saying, “Scar tissue has no symptoms.”
None of my doctors ever checked to confirm that the lump was not scar tissue. During those three years my lump grew. When I finally got diagnosed the doctors told me that the lump was an endometrioma mass that grew and attached to my abdominal rectus muscle. When I had my surgery to remove the mass, surgeons had to remove 8 cm of my muscle, the muscle sheath, vein complex and the inferior epigastric artery.
I no longer have pain from the endometrioma mass, but I am left with a permanent herniated stomach, incapacitated from many daily activities, and cannot carry another pregnancy. I have no pelvic endometriosis; the endometrioma mass found in my abdomen was the direct implantation of my endometrium cells during my cesarean. There was nothing in place to prevent this event from happening or to diagnose me at earlier stage. My doctors completely ignored my lump and symptoms. They refused to believe me though all along I was pointing at the problem.
I’m sharing my story, in the hope of raising awareness and informing the public of this overlooked cesarean risk, to help change the outcome for other women.
Please take a moment to read my story.
My mission is to raise public awareness of this overlooked and misdiagnosed cesarean risk. Women and doctors need to know what to look for when postpartum problems arise. Doctors need to be well aware of this condition, so women can get early diagnosis and treatment, which is vital with this progressive condition.